Ileostomy Support Groups

The BCIR has been performed for nearly 20 years in thousands of people. Anyone who is considering undergoing the BCIR operation can receive a list of people with the BCIR to contact who are very available to share their experiences.

Dr. Barnett helped to create a non-profit organization of BCIR patients for purposes of education, support and sharing. This is the QLA or Quality Life Association. Nominal annual dues includes a subscription to the quarterly publication Horizons, a forum for sharing information and tips concerning management, and opportunity to attend the annual national conference as well as various regional symposiums. Of course, all patients who undergo the BCIR surgery receive a Patient Handbook and extensive printed discharge instructions. These are all reviewed with each patient by me and by the specially trained nurses at the hospital.

Our hospital-based Continent Ostomy Program Coordinator is very available for support and help. She has extensive experience with BCIR patients and is also involved as leader of a support group of the CCFA (Crohn's and Colitis Foundation of America - Greater Los Angeles Chapter). I would like to emphasize that I encourage all of my patients to contact me directly at any time to respond to questions or concerns. I always tell people that there is no such thing as a dumb question, only a dumb answer!! I am very easy to reach through the office, including nights and weekends. If I am away, one of my colleagues who is very familiar with the BCIR will always be available. It is unfortunately true that many local physicians and nurses are not knowledgeable about the continent ileostomy. I am available to communicate with your doctor both by telephone and by mail to make sure they know your individual situation.